Lesson 941 – Lyme Disease – Status

The last Lyme disease update I put on my blog was rather celebratory. I had finished 3 months of medication. Yay!

Many of my symptoms had, it seemed, melted away. Yay!

I was cured. Big Yay!

And then about 2 weeks after I had stopped the medication, I started to feel some very familiar twinges in my shoulder and elbow.

Hmm, I thought, it must just be the weather, you know that crazy New England weather of ours.

And then my muscles started twitching a little bit more at night. The bottoms of my feet start hurting again and that Achilles tendonitis like a song that you can’t get out of your head, started making itself heard. At first just around the edges and then it became stuck in my brain.

To be fair, the symptoms were not as severe as they were when I first started treatment, but there was no doubt about it, like in the movie Poltergeist 2, they were back.

To those who are struggling with Lyme, I know that this does not come as a big surprise. Although it would have been terrific to have been cured in 3 months, even I knew it was highly unlikely.

Based on the many (many) stories I’ve heard from others who are afflicted with Lyme and co-infections, it is the rule, rather than the exception to be treated (and to suffer) for a long time.

Does it mean the medication didn’t work? Was it that the Lyme bacteria which is clearly throughout my body managed to keep away from the meds in the form of cysts? Did I need to add extra supplements?

Who knows.

But this I do know. I am back on a restricted diet (even more restricted than before, this time I’m doing Paleo – and actually loving it, I’ll write about it later) and I’m back on the antibiotics.

Which of course means that I’m back to throwing up – so any and all recommendations in that department will be greatly appreciated.

This time, however, I’m also adding various supplements and herbal products (which I will also be writing about  later.)

And I won’t be in such a rush to come off of meds again.

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Thank you all for your comments and discussion. I read every single reply and find much value in your experiences.

Disclaimer, this is an account of my Lyme symptoms and treatment, it is not intended to be used in the treatment of anyone else’s condition. Please consult and work with your physician if you think you may have Lyme.

Let me know if you have any questions about my Lyme symptoms and/or treatment, if I don’t have the answer, I’ll find someone who does.

***
Wendy Thomas writes about the lessons learned while raising children and chickens in New Hampshire. Contact her at Wendy@SimpleThrift.com

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10 Comments

Filed under Life Lessons, Lyme Disease, New Hampshire, Personal

10 responses to “Lesson 941 – Lyme Disease – Status

  1. I’m sorry. I get that same way if I go off. I am fine with feeling better still on my protocol though. It’s better than nothing.

    • Wendy Thomas

      As of now, I’m not in any hurry at all to get off of the meds. I think that treating Lyme is more of a marathon than a sprint.

      Wendy

  2. I hate to suggest adding another med to your list, but Zofran is a very effective anti-emetic. It was first developed for Chemo patients (I was one, and can attest to its efficacy), but is now even offered to flu patients!

    • Wendy Thomas

      I might look into that. I’m not big on adding extra medication to the mix either but I’m also not so hot on throwing up often.

      Wendy

  3. So, sorry to hear you are not feeling well. I didn’t know anyone who had Lyme disease until about a year or so ago. Now, it seems like every time I turn around I meet someone who has it. I can only imagine how painful and frustrating it must be. Hope you feel better soon.
    -Cindy

    • Wendy Thomas

      Cindy,

      You live in New Hampshire? It’s my personal belief that there is an epidemic of Lyme disease in our state, the problem is that it is woefully under-diagnosed and as a result not treated until it goes to the chronic stage where it starts getting mis-diagnosed. (MS, Lupus, arthritis, Rheum, etc.)

      Everyone who lives in NH is at risk.

      Good luck with your treatment.

      Wendy

      • Hi Wendy,

        Luckily, I do not have Lyme disease…yet. We do have a huge field behind our house and I’m sure it is loaded with ticks. I do live in New Hampshire and as I mentioned, I am amazed at how many people I have met who have it.

        Thanks to them and people like you, I will be extra cautious when venturing out into my field and neighboring woods. I agree that that it seems more prevalent than ever. I hope you continue to get the word out and share your stories as I am sure it helps.

        Thanks for sharing!
        Cindy

  4. We seem to be on about the same time line. After about 4 months of partial progress, I was given a month off to get my system straight and just started GSE and 3 other meds. So far, so good.
    Maybe peppermint tea with your pre-med food? 8)

  5. Hey, Wendy, Sorry to see this update. Was hoping yours was smooth sailing. I’ve had great results working with Denise McMahon at Bridge to Natural Wellness in Manchester. She’s and a naturopath who, together with my MD (and antibiotics), has helped tremendously. Feel better! –Dana

  6. Rebecca Waldron-Geranis

    I found eating half of my meal, taking my antibiotics, and then finishing my meal really helped with the nausea and throwing up. If I tried to take my pills before eating or after eating, my stomach got upset. I don’t know if there is any science to my protocol, but it worked for me. I have a question for you. The shoulder “twinge” that you speak of, can you describe this for me? I have found that I get that feeling like my left shoulder blade has fallen asleep, like a tingling feeling. At the same time, my left foot sometimes feels funny and cold.

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