A few interesting things to report this time.
Last week, if you recall, I was moaning (whining) about my leg hurting and wondering if it was Lyme, older age, or the weather – I may have my answer.
This week, I have very little – to no pain in that leg. Seriously, this was the leg that last week, wouldn’t work when I tried to go up or down stairs. My age and the weather hasn’t changed and so, I’m going to go out on a limb and say that it was the Lyme.
There is a reaction called a Herxheimer reaction that you sometimes get with infections. This reaction often happens when people get put on antibiotics for the first time or when medication gets switched.
The medication, in doing its job, attacks the offending cells or organisms and kills them en masse. By killing that many cells at once, a large amount of toxins are suddenly released into the host body. On the outside, it may look like you have gotten sicker (which is why a lot of people give up on antibiotics for Lyme – it makes them initially feel a lot worse.) The thing is that this reaction is (relatively) short lived and goes away once things have balanced themselves out. Continue reading
I’m continuing with the Lyme antibiotic medication and having very few complications (read vomiting episodes.) The headaches I had a while back seem to have also disappeared.
It figures, things have finally gotten easier now that I only have a few weeks left.
Some things I’ve noticed. It’s getting easier and easier to say things like “oh I’ll just have 3 crackers with cheese” instead of saying “no thanks.” Or “it’s been a long time, I *deserve* to have a drink with my friends” instead of saying “you know what? I can have as good a time drinking a glass of juice.”
Last night I went out for drinks with a friend and yup, I paid the price with a belly ache for most of the night (although I had a great time with my friend.)
It might have been the gluten from the crackers, the dairy from the cheese, or the alcohol from the (yummy) martinis, or it could have been the combination of all. Continue reading
The end is in sight.
Guess what I did last night?
I ordered my last refill of antibiotics. That’s right, I have one more month to go on the medication and then I come off to see what will happen.
If nothing happens with regard to my symptoms returning, then I go on my merry way – one of the very lucky ones.
If some or all of my symptoms come back then I either go back on the medication or we take a closer look to see if maybe I have a co-infection (not unlikely as 3 of my Lymie kids have had co-infections) and if it looks like I do, then another medication will be prescribed.
I’ll be crossing that bridge when I get to it. Continue reading
Last week I wrote about how Doc Holiday wants our “Bart kids” (2 are being treated) to be on antibiotics for the life cycle of a red blood cell (120 days or roughly 5 months.) The reason for the change (it had previously been for 2-3 months and then a break to see how things were progressing) was because Lyme docs now believe that Bartonella “hides” parasite-like inside the red blood cells, and if you don’t continue treatment until *all* the red blood cells turn over then you risk re-infection (or more accurately continued infection.)
Bartonella in the blood
In doing some internet research on Bartonella, I found this little tidbit: “The Gram-negative bacterial genus Bartonella currently comprises roughly two dozen identified species, about half of which are known to infect humans.”
So there are roughly one dozen species of Bart that can affect humans and most docs, if asked what Bart was, would say it’s that yellow skinned boy on the Simpsons. It borders on criminal. Continue reading
Had a busy day and my post got away from me. So instead of a chicken story, I leave you with a picture of what I’m bringing to a potluck dinner tonight.
I love doing this kind of stuff (why on earth do you think I had 6 kids?)
If you follow my Thursday posts, you know that I have been diagnosed with chronic Lyme and am currently being treated for it with large amounts of antibiotics. And if you’ve been reading my weekly updates, you know that I’ve been struggling with keeping those meds down.
I have to take them on an empty stomach and sometimes, they just don’t sit well.
On Saturday night, Marc and some friends of ours went to see Rocky Horror Picture Show at a local theater. The movie started at 10 and wasn’t going to be over until about 12. Knowing this, I had planned my dinner before the movie and then only had a drink at the theater to ensure my stomach would be empty when I took the meds at 11:00 p.m.
At about 11:20 p.m. I knew I was in trouble. I started salivating (a sure sign) and my stomach started rolling. I started getting *that* feeling at the bottom of my throat. Continue reading
I definitely have a love-hate relationship with these
One of the frustrating things about treating Lyme disease is that it takes a long time – where not much seems to happen.
This past week I threw up a few times and I’ve since stopped drinking coffee in the morning (and let me tell you as both a writer and a coffee drinker that was a tough thing to do.) I normally drink 2 -3 cups of coffee in the morning and then nothing else for the rest of the day. When I stopped coffee in the morning, (the acid, mixed with the meds just did a job on my stomach) I forgot to have a cup or two in the afternoon.
Which caused a caffeine headache (a unique kind of hell on earth.) Now I try to remember to have a small coffee with lunch or later in the afternoon in an effort to stop that (I suppose that I could just endure it for a few straight days and be done with it, but I’m not sure I want to give up coffee completely.) Continue reading
A Lymie’s best friend.
I saw Doc Holiday last week and he’s really pleased with my progress. Although I am not entirely pain-free (and not sure that I ever will be) the pain has decreased to a level that I can certainly live with. And I still have hopes that it will decrease even further.
Just as a note, I am considered a chronic pain patient (previous extensive orthopedic damage and undiagnosed Lyme disease.) I am on a pain contract which means that I have access to narcotics on a regular basis. This summer I stopped taking all narcotics because the pain level had so greatly increased (I know, what?) and there was the real potential for me taking them *all* the time (make it available and they will come.)
Narcotics are not as fun as they sound. They absolutely screw up your digestive system and mess with your mind and memory. Even still, there wasn’t a day that went by where I didn’t think it would be easier to just get the meds so that I could have some relief. Continue reading
Last week I attended a recipe swap. I made a fall dessert dip, some crescent pumpkin rolls, and then I made some novelty cookies called Mammo-grahams – figuring that they were “sort of” fall-like because Breast Cancer awareness month is October.
And besides, as a writer, I can appreciate a really good play on words and this was one.
I had seen a recipe on the net which was cute but I wanted to make some that were more realistic – you know like those cheese stick fingers that are served around Halloween, I wanted to get people’s attention. Continue reading
This is close to the end of my taking antibiotic medication for one month for Chronic Lyme disease.
This is the point where Doctors who are not familiar with or who are not versed in Lyme treatment would say “that’s it, you’re done.” There is a lot of debate in the medical community about whether after one month of treatment; the lingering complaints are due to damage from the disease (coined Post Lyme Syndrome) or whether it is still the Lyme bacteria in your body doing its thing.
And while there is no doubt that if you have Lyme long enough, you have permanent damage to your system, on the other hand, if you keep showing improvement – that speaks volumes to the theory that the Lyme is still in your body and still needs to be attacked.
I’ve had an interesting week. The cold weather has settled in and for the first time in ages (and I mean at least 10 years) my hands and feet are not turning ICE cold in response to the outside temperature (and resultant chilly house.) Continue reading